Lympho-what?!?!

8th Grade Journal (1992-1993) – Chapter 7
I am currently going to Hillside Intermediate School. I am in 8th grade, my favorite classes are Office Aid and Journalism. I may be interested in a career that deals with either of those in the future.

This book would be like a hamburger without the meat, if I didn’t tell about my most recent and most important situation I have found myself in.

It all started about the same time that this 8th grade year began. I wasn’t as happy this past year, as I had been in previous years. It seemed like everything in my life was stressful, an ordeal, nothing seemed easy. I was tired all of the time, and my life just wasn’t as whole as it had been before.

One day, my mother and I were in our basement watching a movie. I went upstairs to make some popcorn. As I was waiting for the popcorn to finish cooking, I scratched my neck. I noticed that I had a little lump in the bottom left side of my neck. I checked they other side of my neck for any lumps. There weren’t any. “Mom,” I yelled. I ran downstairs to show my mother my neck. We began to get a little worried, my mom got out her book on health and we found that lumps in the throat sometimes mean swollen glands. I had had a cold, so just figured that I had an infection that had resulted in swollen glands. We called my doctor and he agreed that we were probably right, and he gave me a prescription to start taking over the phone. He said, “If the lump doesn’t go down in two weeks, give me a call.” So, we tried out the medicine for two weeks but the lump wasn’t going down. It was getting bigger.

So we paid a visit to my doctor. The doctors were perplexed at first, but then my main doctor said, “Well, let’s get a chest x-ray.” The chest x-ray revealed that I had a white mass in my chest. They took my Mom outside the room to talk. They told her that they thought it was cancer. I was oblivious to all the happenings outside the door, until my Mom came in the room with tears in her eyes. That’s when I knew that something was seriously wrong. I was further assured of this when one of the doctors told us that I would have to get a biopsy to find out what was really wrong with me. They said they’d contact Primary Children’s Hospital and inform them of everything that was going on. We were to go there the next day. I felt flustered. What was going on? (Why was it going on?) Why did everything feel so strange all of a sudden?

When we got home my mom took my brother Tom outside to talk. I decided to call Sarrah and tell her about all of the weird stuff that was happening. She didn’t believe me and thought I was joking. But she soon found out this was no joke and so did I.

The next day at PCH, as the first doctor to see me was looking me over he said, rather bluntly, “Well, basically what we’re most likely looking at, is a type of lymphoma.”

“Lympho-what?” I thought.

The rest of the day was spent having my blood taken, taking x-rays and being told what to expect, if what the doctors predicted was wrong with me, was actually true. I soon found out that the word “lymphoma” meant “cancer of the lymph nodes.” I felt like a statue. I didn’t know whether to cry or scream, or just tell all the doctors to shut up for a minute and let me think. So, I just sat there, soaking up all this new information like a sponge. All I wanted to do was go home and have all this stop and let things go back to normal.

When I finally did get home, I started bawling. All I could think about was, “Why was this happening to me? What did I ever do to deserve this?”
I have a whole new set of problems now, and even though it’s tough to go through this, I am actually grateful for this experience, because I’ve experienced something most of the kids my age and even most adults can’t even comprehend. I am a lot stronger and braver now, than I ever was, and by far the biggest thing I’ve gained is knowledge. Sometimes I can just feel it, flowing through me like a river. And in the end, my body may have suffered a bit, but I can help that by developing good habits to make it as healthy as it can be. But it was my spirit that was nourished and that is something some people never accomplish. Just to think that I still have my whole life ahead of me, and to already have learned this much, is an utter joy to me. That is why I’m grateful.

Perspective on embarassing days

8th Grade Journal (1992-1993) - Chapter 10
Pride. It’s a good word and the subject of this chapter’s lesson. There are all sorts of people walking around, which is an understatement. But they all need one thing in their lives, or life simply would be complete. That thing is pride. They all deserve to have it, too. What better thing is there to be proud of, then just what they’ve lived their lives for as long as they have, without giving up?

I am glad to say that I am a proud person. I have many achievements to look back on, and many to look forward to.

For instance I think maybe the proudest moment of my life will be when I am through with all of my cancer treatments. I hope it will feel like a new beginning. I’ll just be so happy to finally reach the end of it all, yet proud that I got through it. I bet it will be a magnificent day, and I hope it is not far off.

Another proud moment of my life was, ironically, one of my more embarrassing ones. But it was the way I handled the embarrassment that makes me proud. It was the day my hat fell off in front of people I didn’t even know.

I was playing basketball with my cousins, and a few of their friends (luckily, I was the oldest one of the bunch) when one of them passed the ball to me. It was a bit high, and seemed to fly right over my head. I checked to make sure that my hat was on securely. But wait a minute, what’s this? Instead of feeling the security of my hat, I felt the barren wasteland I now called my hair. “I’m going to die,” I thought. It felt like my best friend, that I’d depended on so much, had just become my traitor. All eyes were upon me, mouths gaping open. I turned around to pick up my hat. My cousin handed it to me, saying, “Here you go, put this back on.”

“Thanks,” I said.

Once it was put securely back on my head it was as if all the kids simply forgot the incident and went back to playing the game. I was relieved. I had feared the day my hat would come off ever since I’d had to start wearing one. But this wasn’t what I had expected at all. I didn’t die of embarrassment, the world didn’t end. It wasn’t that bad, and I felt fine.

The real thing to be proud of, is that no matter what a person’s problems are, as long as they keep on trudging down that rocky road of life, they have a very great achievement already accomplished.

I haven't lost my hair yet!

Dear Diary – 1/3/93,
Hi. How are ya? How’s life been to you over the past – oh – 8 months? Life’s not been so great to me. Because – you see – last November we found I have c-a-n-c-e- r. Cancer. Hodgkin’s Disease to be exact. I’ve had 3 treatments of chemotherapy so far, and tomorrow I’m going to have surgery at 7:30 in the morning to have a catheter put in called the “portocath” (I think that is how you spell it). I was supposed to write to you about this sooner, since everybody keeps telling me I should be keeping a journal about this stuff, but I just haven’t got around to it yet. I don’t want to go to sleep, and it’s pretty late right now (about an hour behind when I should’ve gone to bed, 9:30) because I’m scared. I mean, tonight’s my last night without a thing in my chest, and I hate the idea of surgery, because my last operation (a biopsy to determine what exactly was wrong with me), wasn’t so pleasant because I hated having the anesthesia. It was like a nightmare started in my head as soon as I breathed it. Oh! I have some good news! I haven’t lost my hair yet!

Well, I’ve lost some, but I’m not even close to being bald yet! And even if I do lose it – we’ve already ordered a wig which I was supposed to get yesterday, but, due to bad weather (really bad weather, tons of snow, more than I’ve ever seen!) we had to cancel the appointment with the hair people, and postpone it to sometime, maybe this week, if I’m feeling well enough. The chemotherapy isn’t as bad as it was the first two treatments because they gave me a new drug to help with the nausea and vomiting, which really helped! After 3 treatments, I’m already doing a lot better! I had cancer in 3 spots, my right abdomen, the left side of my neck, and in my chest, and already the spot in my neck has been reduced 25%, and in my chest the tumor is at starting size, and the part in my abdomen is completely gone. And, fortunately, when they caught it, they caught it very early.

Who would’ve thought – me – with CANCER! Although – I always had a feeling when it came to cancer. It always affected me really deep when I’d see the kids on chemo. that didn’t have hair. I don’t know – maybe Heavenly Father was trying to tell me something.

Anyway, everybody is really nice and caring and we (me and my family) appreciate all of the support we’re getting. And I’ve learned to accept it, and now am just trying to get better. My holidays were good, better than I expected. I got a leather jacket! But, that’s not the only thing. The thing that really made it special was that Lisa & Savannah were here. They are two of my favorite relatives. I love them so much! And I’ve been really sad today and yesterday because they had to go back to San Diego today. And I won’t see them again until April probably. But, the good thing is, is that next time I see them, my cancer will probably be gone. So that is something to look forward to, since Lisa & Mike are two of my very favorite cousins, and Savannah is the cutest baby I’ve ever seen, and she gets cuter every time I see her. Well, I better go back to bed.

Wish me luck tomorrow! See you later – I hope.

Love, Sarah – the one and only!

The most important thing is that I get better!!

Dear Diary – 1/10/93,
Well, I survived the surgery last week! But, I’ve got to tell you – it was a nightmare! First the doctors said it would only be a 15 min. operation – it was an hour-and a half (at least that’s what my mom told me). Next, the anesthetic they gave me (which wasn’t so bad this time) through the hand leaked into my tissues and caused my hand to swell up like a balloon! I couldn’t even see my knuckles! Next, the incision in my neck was bleeding, and dripped up onto my neck and head, so when I woke up I had dry blood all over me that needed to be scraped off! Next, I started throwing up from the anesthetic, and the incredible pain in my neck and right-side-of my chest hurt so bad, it was hard to sit up and do so, so I’d end up throwing up all over myself. As if things weren’t bad enough! Well, I’m better now, the pain is all gone. And you know what? I don’t feel all that different now that I have the port-o-cath inside me. I thought I’d feel all different, but I’m still the same old Sarah!

Oh, by the way I got my wig. I hate it. I hate the sight of it. Because all it makes me think of is being bald and ugly. Even though I know I’m not ugly, I feel ugly sometimes. Like, when I look down at my feet, or when I look at my bare chest in the mirror and see the outline of the line of tube that connects my port-o-cath. Or, when I pull out some hair that is hanging lifelessly from my head. And, it makes me feel even worse when I think about boys. Let’s face it. About every girl my age thinks about boys. And I know there’s no cute boy in school that would like a girl with cancer and a wig on her head. I mean, they could like me as a friend, but they wouldn’t like-like me. Know what I mean? My hair has been coming out more in the last few days and it just makes me more and more scared of that fateful day when I find a bald spot, or my hair is gone completely. I’ve always thought I’ve looked like Julia Roberts or the girl on “Northern Exposure.” When I’m bald the only person I’ll look like is Sinead O’Conner (who’s bald). Oh, by the way, tomorrow I have an appointment for chemotherapy. I’m just praying that I’ll be able to keep my hair. I have a strange feeling that this treatment will be the one I lose it. Oh, I hope it’s not. But, then again, I hope I won’t lose any more hair than I already have on any more treatments – and I have 9 more! I hope Heavenly Father heard that. I know it’s a long shot but if there were just some way – oh, I’m being stupid. The most important thing is that I get better!!!!

And by the way, this could be the last time I ever write in you with hair on my head – so cherish the moment! Bye – for now.

Love, Sarah

Wish me luck!!

Dear Diary – January 25, 1993,
Well, hello how are you? I just finished watching the 50th Annual Golden Globes Awards! Which, by the way was a little disappointing. Well, enough about that. You ready for this? I still have my hair! I’m so happy! But, I probably won’t have it much longer. I go to a half day of school tomorrow – and then I go to the hospital for some tests. I am kind of excited for the results since my last tests gave such good news last time. I know it is a fat chance, but I am hoping that the tests will show such good news that the doctor will say I don’t need as many as 12 treatments, and that they can shorten it. Everybody is telling me it’s a long shot, but I can still hope, can’t I? It would make me SO Happy if that could be true.

I know that the most important thing is that I get better, and in a way I am a little grateful for this experience, because it has given me more things to think about, and it has allowed me to grow as a human being. Well, anyway, the day after that (Wednesday) I have another half day at school, and then I go and get chemo. So, wish me luck with the hair issue – once again! Well, I guess I should tell you about my last treatment. Last one wasn’t as good as the one before, but, it was better than the first two. I still threw up about 10 times, but wasn’t too bad. Except, however, for the fit I threw at my mother in the car on the way home from Grandma Lorraine’s. I was mad because nobody was letting me take my time getting better, and they wanted things to be like the time before, and it made me MAD! And, it felt REAL GOOD to scream and yell a little bit, and from now on, I’m going to do it from now on, whenever I feel like it!

I have made a revelation! My revelation is this! I love life, exercise, and FOOD, and most of all being happy, and feeling GOOD!!!!!!!!!!!!!!!!!!
I just thought I’d tell you that.

Wish me luck!

Bye for now!
Love, Sarah

Thanks for being here!!

Dear Diary – April 25, 1993,
OK, I’m so sorry that I haven’t written in (exactly) three months, but I’ve just been kind of lazy and getting around to it, (you know how you always tell yourself to do something but you still forget?) So I’ll try to bring you up to the basics:

1. I have had 9 treatments so far, only 3 more left! (They said I’d have to do all 12)
2. My hair is basically gone, (5th treatment) I still have about 20-30 more strands, and there’s kind of fuzzy on the top of my head from the hair that is already starting to come back. But, I wear a hat* all the time (I have quite a cute collection now), with a bandanna on under it, and the important thing is that I’m comfortable and I look great in them.
*we gave the wig back – thank goodness
3. Two catscans ago (the one I was talking about last entry) the results were that the cancer had gone down 80%!
4. Two weeks ago, I had another catscan and the results were that the doctors could see a little bit of enlargement in my lymph nodes, but they said that that could be just a little bit of it left over – or scar tissue! Isn’t that great? I’m pretty proud!
5. My birthday parties were a smash! They were both really fun!
6. It’s spring now! Easter was real fun! I spent Spring vacation in St. George with Uncle Paul and Shelley’s family that was really fun! The only thing that I wouldn’t live over is the part that we were playing basketball with some other little boys that went down there, and someone passed me the ball a little high – and poof! My hat came off my head! I thought I was going to die – but Mary Kathryn said that I reacted very well, I just turned around, picked up my hat and put it back on, and the game was back on again!

Well, things are O.K. I look really healthy, my color is back and better than ever! I look real good – even without hair!

It’s pretty hard, but I’m chugging along alright. Sometimes I get really sick of all this, and I just want things to go back to normal, but then I remember how lucky I am that I’m beating this thing so well.

I can’t say that I don’t miss my hair terribly. There are boys at school that I like, but it’s hard because I know that they wouldn’t like me, because I have to have a hat on all the time. Sometimes it’s hard to just keep my head above water, but I’m doing really well in handling this, and I’m real proud.

I’m really looking forward to summer, because I should be about done with all this crap and I can start to relax. The real big things that I’m looking forward to are the trips to California. And I’m looking forward to my hair coming back. I’m anxious for things to go back to normal, because then my life will be better than ever, because I will be so much wiser from this experience, and I’ll appreciate things more.

By the way, I love my clothes! I have all the kinds I like.

Well, wish me luck! I’m not quite through with this yet! I still have to pull a bit more strength out of me to help me deal with this stuff!

I’ll try not to be gone as long as before.

Love ya! Thanks for being here!

Healthy as a brick!!

Dear Diary – October 25, 1993,
Well, Here I am! I am through with all of my treatments, I’m healthy as a brick, I’m pretty again, and I don’t wear my hat to church anymore! I do however still wear it to school. I’m waiting for the back to get a little longer. I am in Highland High, which is pretty fun, I had a pretty good summer despite my 23 radiation treatments, I got my port-o-cath out! I went on two trips to California, one with the whole family, the other was just Mom and me, and flew down to see Mike, Lisa & Savannah! They were both so fun! I went to Lagoon with Melissa Christensen, and I did a bunch of other fun things. I’m sorry I haven’t written for a long time – if you’ll notice it’s been 6 months! I’ve been finished with my treatments since school started, and now I get check-ups every two months. I’ve had one so far and I turned out absolutely fine! My next one is November 17! I’m feeling really good, my strength is coming all back to me, I’m gaining weight, and I’m very happy! Everyday I try to be grateful for all of my blessings and for being well!

Warmth of the sun...

March 10, 1994,
Guess what? A very neat thing happened last week! Well, it’s been getting closer to spring so the sun has been out more – and you know what? I felt sun on my hair for the first time in about a year!
It was so neat – it felt so good, I was so thankful!